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It has been a busy past few days here. I feel accomplished though, by getting a lot of things done. So I thought I’d let you know what I’ve been up to an give a little update.

Friday I made about a billion phone calls including;

  • Calling to find out when Kayla’s next neurology appointment is. It still isn’t until May, even though were are on the cancellation list. For some reason, the neurology appointments at Children’s hospital are booked out in advance at least six months at all times. Highly frustrating. I really want to know what this new neurologist thinks of Kayla’s ‘ticks.’ (I’m not really sure what they are, this weird arm flapping, jumping motion she makes that seems to only get worse with time. They seem to occur more and more frequently. The nurse practitioner we saw at the neurology office last time said it may be a movement disorder of some sort.)
  • Set up an appointment to get Kayla state disability checks. I don’t know why I didn’t do this when she was first born, I guess I wanted to prove so badly that we didn’t need any ones help to take care of our daughter. But with the medications, occupational, speech and possibly physical therapy she is starting now we just can’t afford it. The co-pays alone are $15 dollars per doctors visit with our insurance. That doesn’t sound like a lot, but factor in the fact that she will have a MINIMUM of 3-4 visits a week, we will be paying $45 + plus a week for her treatment. And I don’t work so I can stay at home and take care of her. And we live in San Diego (holy cow it costs an arm and a leg to live here!)  We barely make it by most months, so any help we get will be heavenly.
  • Set up Kayla’s occupational therapy appointments. Every Monday, for the next 24 weeks, we will be doing occupational therapy. I am extremely excited to see how much progress she makes! I can’t wait!
  • Talked to my psychiatrist about the medication he prescribed. I was supposed to have an appointment today with him so he could find out how the medication was working for me buu-uut I hadn’t actually been taking it. He told me what all he other doctors had pretty much told me, about how there aren’t a lot of other options out there for breastfeeding mother’s with Bipolar disorder. He decided to prescribe Lexapro to at least help with the depression and anxiety, but he wanted me to double check with Ava’s pediatrician to make sure he thought it was safe enough to take. Her pediatrician told me it was not recommended because it hadn’t been studied enough. So I didn’t take it. But I forgot to call the psychiatrist for a week to let him know. When I did call him, he stressed the importance of me taking the Lexapro. He told me discontinuing the nursing would probably set off hormones to spiral me into a deeper depression and that wouldn’t be good for me or the kids. His recommendation; don’t stop breastfeeding, take the Lexapro in an extremely low dose. He also told me he had consulted with two other doctors about it. He told me that her pediatrician was covering his butt, that he doesn’t know the benefits to risk factor, and told me that the studies had only found high doses of the medication to cause drowsiness in infants. So my low dose should not affect her, and if it does, he told me to discontinue it.
  • So I started taking it on Friday and I swear, I feel better already. I know, it has to take a couple of weeks to build up in your system but I think it’s working already. Maybe it’s just that I want it to work so badly that I’m working it up in my head with kind of a placebo effect, but I don’t care. Whatever it is, it’s working. Although side effect wise, it makes me feel like I’ve had six cups of coffee, a little shaky, but I’ll deal. Ava seems to not be affected at all by it. She seems they same as she did all week before I started taking it. She was teething before I started, though, so it’s hard to judge.
  • I got car insurance…YAY!
  • I also paid the gas and electric and the cable bill. Blah.

Saturday we went to visit my parents and we played some guitar hero and Wii bowling. The mood is pretty heavy over there (understandably) due to the fact that my Great Aunt decided to evict them from their house. I kind of want to kick some butt over that. Oh! I also got to feel the baby belly of my little future niece or nephew. I have a feeling he’s a boy. But, of course, I thought both of MY girls were boys.

Sunday we relaxed around the house a bit, went to Sears Essentials and bought new car seats for the kids. Kayla had outgrown her car seat and was ready to move to a booster type seat. We bought a bright pink one and it’s so cute! We decided Ava needed one to match, also hers was dirty beyond belief. I figure car seats are not really one of those frivolous things. They are kind of a necessity. So no splurge there.

This has turned out to be quite a long post an I still have a bunch more stuff I was going to type but I guess I will get to that later. I probably lost most of you by bullet three, but the caffeine overdose effect these pills are giving me is kind of making it hard to write, or stay on subject for that matter.

Off to take a nap (I hope!), I finally got the kids to go down at the same time and I am going to take full advantage of it.

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Today was Kayla’s evaluation for occupational therapy. We have had so much grief with referrals, primary care doctors and insurance I was glad to just have it over with. Now we have to wait for them to “score” her evaluation and submit it to the insurance to see if they’ll cover it. Ugghh.

She loved going though, she got to color and play with blocks. OT has now been coined the “fun dodtor.”

She brought her new troll doll with her because she has this new obsession of bringing her toys with her wherever we are going and then making me carry on conversations with them in public. All the toys refer to me as ‘mama’ and they usually want to tell me they are hungry or that they want to go to grama and papa’s house or try to convince me to take them swimming even though it is 60 degrees outside. It must be pretty interesting to see me in the grocery store telling a troll doll, “I’m sorry but we only go over to grandma and papa’s house on the weekends but I will be more than happy to take you on Saturday.”

At the doctors office, Kayla forgot her Troll doll in the waiting room while we went back into the office for her Eval. When we came out I had to finish filling out some forms so we sat in the waiting room for a while, during which Hubby noticed that Troll doll was entertaining another child waiting in the waiting room. It was no big deal, Kayla was playing with something else and I still had another page to go so I just went back to filling out the paperwork. Not long after that, a woman came out and called the child back for his appointment. We sat there and didn’t say anything (Kayla has SO many toys it wouldn’t make even the slightest difference) but as they were wheeling his stroller back the mom said “Honey, you’ve got to leave that out here for the other kids to play with.” The child set down the toy on the nearest chair and the woman calling them back snapped back “Oh, he can do whatever he wants with that, it’s not ours. We don’t buy toys like that.” After that we had to sneak over, grab he doll and stash it under one of Ava’s blankets. We wouldn’t want to be seen carrying one of those toys.

Am I missing something? It’s a doll.

When we got home we had lunch (I’m not even going to tell you what because it was so deliciously good and so deliciously bad for you I cannot even say it out loud.)

Okay, it was KFC. But damn it has been so long since we got KFC and it is so tasty. I just worry that my arteries are clogging up as we speak.

Once we had eaten it was time for nap time and since my husband works nights we decided to all take a nap together (which never happens, so it was totally awesome). Ava, however had other plans and decided she was going to be a fuss bucket and kept whacking me and hubby in the face. I could tell she was tired, but she just kept fighting it and fighting it unil it dawned on me; she wasn’t wearing her favorite jammies! These jammies. I don’t know what it is about those fleece jammies but she refuses to sleep AT ALL without them. I keep the heat at 74 in our apartment (I know, I’m not doing my share with the energy crisis! Sorry! I have two small children and a husband that is like 130 lbs. He is like a chihuahua, if I turn the heat down to 72 he will shiver and shake until I feel sorry enough for him that I go turn it up.) So I know she can’t be cold! She just loves those jammies! After I put them on her it took about 2 minutes for her to pass out completely. I’m talking like 120 seconds people. I have to solicit my mom for the remaining two pairs she told me she would make. If you’ve got small children, I suggest you do the same. They will sleep like, well….babies.

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I am a mother to two girls; one is my little miracle "baby" and the other is brand new. This is life with a special needs child and a newborn...>> >>More...

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